Family disease, a: a memoir of multigenerational ataxia
Auteur :
Creighton, Dana Lorene
Éditeur :
McFarland & Co Inc
ISBN :
9781476683188
Date de publication :
25 janv. 2021
Dimensions :
22,9 x 15,2 x 1,0 cm
Poids :
272 g
Format :
Trade paperback (US)
Langue :
Anglais
Pays d'origine :
USA
Drawing on research in neuroplasticity, medical records, personal correspondence and genealogy, this book highlights the gap between the experience of debilitating ailment and the impersonal aims of clinicians, and shows how the stories parents tell themselves about living with a genetic disorder influence how they communicate it to their children.