Entanglements of rare diseases in the baltic sea region
Auteur :
Rajtar, Malgorzata / Król, Katarzyna E.
Éditeur :
Bloomsbury Publishing Plc
ISBN :
9781666942385
Date de publication :
16 oct. 2023
Dimensions :
23,8 x 15,7 x 1,9 cm
Poids :
490 g
Langue :
Anglais
Pays d'origine :
USA
Drawing on ethnographic studies of the lived experiences of people with rare diseases, this volume critically examines rare, chronic diseases in the context of care, kinship, and technologies, providing in-depth analyses of local worlds that usually remain at the peripheries of medical anthropological inquiry.